Walk . Move . Live with Vionic Shoes

Hello … how you’ve been? Today it’s a funny one. I’m talking about feet. Yep.

I’m sure I’ve mentioned it before but if you didn’t know I’ve got a dodgy right foot…[amongst other ailments]

I used to be Office Manager at a large Design & Build company, that was until I was made redundant after 14 years long service [s**t heads]

I used to love getting dressed for work. I was the one who more often than not  could be found tottering around in pencil skirts, power jacket & high heels. All the gear , no idea!

I was in the car-park one day when something [I honestly can’t remember what] made me laugh. I was wearing my usual sky-scrapers, lost my footing something that occurs a lot due to my cataplexy and my left leg gave way.

Oh oh … Continue reading

Tracey gets fit …an introduction to why?

Today I thought I’d update you on a few things… mainly my health and fitness.

Do you remember a few months ago ( Nov -flipping-ember to be precise!) I had some sleep tests undertaken for my cataplexy?

cataplexy // ˈkatəˌplɛksi/

a medical condition in which strong emotion or laughter causes a person to suffer sudden physical collapse though remaining conscious.

It’s been 10 years since I was initially diagnosed with the condition.

I currently manage it quite ok but I was wondering whether there had been any progress in medical science so to speak. Continue reading

Head problems… and the search for the perfect green dress

I’m currently sat in a little room in Hallamshire Hospital, Sheffield. For the past 24 hours I’ve have lots of little probes stuck to my head with glue that monitor my brain waves. They’re making my head itch like hell, and upon removal will probably take half my hair and forehead skin with them!  I’m also sporting 2 heart monitors and some more probes on my shins.

Welcome to the wonderful and very clever world of diagnostic telemetry.

Last night I had to video myself sleeping. I’d love to be a fly on the wall when the hospital staff watch the first 5 minutes.

Oh lordy, my boyfriend unaware it was filming kept walking past in just his boxers, doing a weird dance and introducing himself to the camera. Continue reading

Tuesday Rambles…

Before we start, this post is a little all over the place… abit like my head today it lacks direction. I’m not sure where it’s heading.Just go with it if you don’t mind.

As you may, or may not know I’m a 44 year old divorcee (I’m 45 in December – how the bloody hell did that happen?!!!) who has been dating an ‘old friend’. We are fast approaching our first year together.Yay!

I have no children. Yes you read that correctly – 44 with NO kids. My wombs fully intact and as my surgeon informed me (I had a cyst removed along with an ovary some time ago) ‘it’s rather lovely and perfectly formed’ That’s something I never thought I’d hear, (or share with the world, come to think of it!) Continue reading

NFD – That catch up post… hen nights , weddings and Maroon 5

It’s yet another catch up post… I really need to get my act together and blog more often.

It’s been an eventful past few weeks. We celebrated the forthcoming wedding of one of my nearest  & dearest friends in style.  Plasticine willy moulding or aubergine penis carving anyone? I kid you not. The detail on some (of the willies) was outstanding! We then jumped into a limo for a an hour of karaoke and fizz (so much fun – I want to always travel this way) before being dropped off in Sheffield city centre for a lovely meal and cocktails at Anchorage. False moustaches, masks, badges and dares..I’d love to say it was civilised…

Continue reading

Cataplexy… All I want is a good nights sleep

Chances are if you are ever lucky ( or some might say unlucky) enough to meet me, at some point I’ll start laughing. You see I laugh a lot. Mainly at myself. When I’m nervous, happy, even sometimes when I’m upset?  You really can’t beat a good old ‘reight from the belly’ laugh.

You will  no doubt notice that when I do laugh, I look slightly odd. That  I hold my body in an awkward way, I’m fighting with my head to keep it upright and that I’ve closed my eyes. You’d probably ask yourself what is she doing?…but be far too polite to ask. You may even presume I’m drunk. This happens a lot more than I’m comfortable with. Only last week my fella informed me that on our first few dates, he presumed I had been drinking and had a little alcohol problem. I was devastated. Hopefully I would remain upright (I’ve only collapsed twice in public, thank god!) if slightly embarrassed as I cling to a wall or the nearest person…. Just relieved not to be in a big heap on the floor.

Narcolepsy

Welcome to my world. The weird little world of cataplexy – a medical condition in which strong emotion or laughter causes a person to suffer sudden physical collapse though remaining conscious. Cataplexy manifests itself as muscular weakness which may range from a barely perceptible slackening of the facial muscles to complete muscle paralysis with postural collapse. Attacks are brief, most lasting from a few seconds to a couple of minutes, and typically involve dropping of the jaw, neck weakness, and/or buckling of the knees. Even in a full-blown collapse, patients are usually able to avoid injury because they learn to notice the feeling of the cataplectic attack approaching and the fall is usually slow and progressive. The term cataplexy originates from the Greek κατά (kata, meaning “down”), and πλῆξις (plēxis, meaning “stroke”).

I have mentioned my condition before as I’ve been living with it for over 10 years now. However my strange little ailment appears to be getting worse.

My sleep is all over. I cant ‘ get my head down’ when I’m supposed too but come 2.00pm in an afternoon and I would do anything to crawl back into my bed for half an hour. I’ve even been known to start nodding off at my desk. It’s taking its toll. My skin looks shallow, my eyes look dark and I’m more spotty than usual. At times I’m short tempered. I get frustrated, running on 75% is no fun and I simply don’t like it. It was bad enough when I couldn’t tell a joke for fear of falling over, now I look constantly knackered and still can’t tell a joke!!

One of the symptoms of cataplexy is irregular sleep patterns. Hence my ability to fall asleep anywhere at the drop of a hat. Nothing strange about that you might say, we all get tired…It’s my mood when I wake up that I do not like. Its a vicious circle, the more tired I am, the worse my cataplexy appears. I’m often groggy and confused. Sometimes I’ll loose my bearings ( where am I, who are you?) and I usually come out with a lot of gobbledygook. Rach, my beautiful friend with lovely long blonde hair and I still giggle about the time I woke up and told her quite seriously that she would look great with a dark brown afro? Yep odd… I have no idea myself where that one came from. Just this week, post nap, I started talking to the Mr about car-parks. I can be boringly at times… But carparks – it’s just odd.

Following a conversation a couple  of nights ago (about car-parks) I decided enough was enough and it was time to give cataplexy a run for its money. There is no actual cure… well l say that. Anti-depressants are supposed to ‘numb’ symptoms along with any personality you had no doubt. My doctor advised me against taking them and to be honest it was a big no no right from the start on my part. I Iike my ‘wacky’ personality thankyou, I didn’t want a watered down, ‘steady’ version of me. I would just have to shut up, put up and get on with it.

I’ve decided to start by changing my eating and drinking habits; to see if this makes a difference. The first and maybe the most obvious is to give up coffee. This may sound easy, however I think I’m addicted to caffeine. On average I would say I drink 6 to 8 cups of coffee a day. I think it may take some weening off in my case! I intend to substitute the coffee with a combination of plain water, hot water with lemon or pure cherry juice. Research advises me that the later is supposed to aid a good night’s sleep, and is also great for gout if your a sufferer.

I also intend to cut down on my beloved pasta, bread and potatoes, and up the red meat and fish intake. Less carbs, more protein appears to be the way forward.

I intend to document my findings and share them with you all on here. Hopefully somewhere along the line I’ll get a goods nights sleep and share how I achieved it. Now I can’t guarantee I’ll not fall down in the process!

Do you suffer from cataplexy, or a sleeping disorder? Do you have any tips or recommendations. I’d love to hear them.

Right I’m off to enjoy a lovely cup of hot water with a dash of lemon… do I sound convincing ? I’m already craving coffee and we’ve only just started…

Oh oh, wish me luck!

Tracey x